As part of Prime Financial Group’s Platinum sponsorship of The Captain’s Ride in 2017, we’d like to introduce you to another of The Steve Waugh Foundation’s Grant recipients – Holly.
“Rare kids are brave. But The Steve Waugh Foundation, and your supporters, are equally brave. Backing not only one disease, but up to 8,000 rare diseases – what a mammoth task! Thank you for not giving up. Thank you for lifting Holly and our family out of the too-hard-basket.” – Holly’s Mum Rachel
Holly has a rare disease called Congenital Disorder of Glycosylation Type 1A (CDG), a rare metabolic condition that causes severe global development delays, including language.
She started school without the ability to speak. With patience, persistence, speech therapy, hard work every day and a will to succeed, Holly’s speech and confidence has improved beyond belief!
The Prime Financial Group is very pleased to be able to support the Steve Waugh Foundation in helping Holly find her voice.
The Captain’s Ride is the premier fundraising event for The Steve Waugh Foundation, and funds raised provide life changing support and champions the stories of children and young adults (0-25 years) with a rare disease that would otherwise have nowhere to turn.